My independent life in 2015

Posted on the

On a good day, with 2 hours of Supoort during the day and overnight support I manage to do the following things.

  • To remain safe all day, without a panic attack, shutdown, or meltdown.
  • Between 1.5 and 3 hours of work at home
  • Prepare cold meals for breakfast and lunch.
  • Brush my teeth at least once
  • Communicate with my friends via telegram
  • Have a bath (with support)
  • Keep my flat tidy and clean (with support)
  • Dress myself and select clothing (sometimes with support)
  • Eat an evening hot meal (someone else prepares it)

On a very good day (1-2 days a week)

  • Leave the flat to walk to my friends house.
  • Leave the flat to attend the local autism hub.
  • Answer the door

The exhaustion is so complete that most days I can’t watch TV because I find the brightness and noise overloading and I can’t follow what is happening. I very rarely play video games. For entertainment I listen to audiobooks, podcasts and when possible I do colouring or play with Lego etc.

This is not how I want to live. I spend 85% of my waking hours managing extreme anxiety as I am home alone and feeling unsafe, exhausted and overloaded.


My productive time is very limited. So I focus the time carefully.

Here are my proudest achievements of the last 3 months.

  • written two articles for net magazine, an internationally distributed print magazine available in the shops
  • Provided support to various high profile BBC teams like iPlayer and News
  • Developed training and resources for accessibility at the BBC
  • Follow and occasionally contribute to the W3C mailing list for cognitive accessibility
  • Kept a blog updated about autism
  • Written techniques and reviews for my autism website
  • Managed a network of 55 accessibility champions including inductions and support with technical questions
  • Helped a friend with a web project
  • Built a prototype autism assessment tool for a special needs school

I am proud of these achievements as daily life is such a struggle. I have achieved what I have despite my living environment and health and only due to the phenomenal support of my friends. I am very tired.

2016 is an uncertain time for me. I need to reconsider my housing again as the current approach is hard to sustain. I might return to supported living so I can move forward with developing living skills and regains the energy currently wasted on daily anxiety.


Spaced Out & Smiling is about exploring the fun side of Autism, and trying to understand what it means to be Autistically Happy.

Social Links

Get In Touch

Jamie: @JamieKnight
Lion: @Lickr