All of the blog posts, neatly arrange by year and category… neat
We’re changing some things with my support and living setup. Here is an outline of what we’re changing and why.
One of the things i find most challenging is long periods home alone. The pressure too keep safe isn’t high, but it is constant and consumes lots of energy.
To try and make my home a little less complex, we have been trying three different experiments. We have been simplfying my home, compartmentalising risks, and adding passive support.
Exploring weight management using routine friendly methods.
How I have changed the way I think about my energy in order to improve my life.
In late November we went to Centre Parcs for a small holiday. It was really fun. As normal the bit i enjoyed most was the cycling. I always get a Trike and take great pleasure in playing postman!
When i got home i was thinking about cycling a lot. I enjoy cycling and own two bikes, but it has been rare for me to ride. I cover at most a few hundred miles per year. Its more than nothing, but not anywhere near enough to make any impact on my health.
Inspried by Centre Parks i started thinking about what i could do to making cycling around near home more sustainable. The bike experiment was born
2018 was a really big year for me. For the last few years I have been recovering from a burnout and operation in 2015. However its a really been the last year where things have started to really come together.
With that in mind, here are some highlights from the last year. Things which have changed or happened which I am grateful for.
I broke my Apple Watch in Vienna on Thursday and replaced it the next day. This is quick post about why I replaced it, and what features drove the decision to replace it rather than going back to my old first gen watch.
I’ve been making a podcast. Here’s a post all about what we made and why we made it.,
Since moving to my new flat about 3 month ago i have been experimenting with how i use my living space.
Most days i spend 20-22 hours in my flat. It’s where i do most of my work and day to day living. This places huge demands on the space to be comfortable, safe and sustainabe
My take on the NAS event I’ll be speaking at in a few months time.
A little exploring of when I charge for presentations and what I charge.
It feels kind of amazing, but its already been about 6 weeks since i moved into my new home. It’s been a pretty long, but positive transition. In this post i’m going to reflect on what is working well and what will need some future tweaking.
I’ve not written much in 2018. I have been super busy with other autism projects… but more on that in the near future.
Today, i’d like to share some wonderful new. This afternoon i exchanged contracts on a new flat. I should get the keys sometime tomorrow.
I have a new home!
An amazing day with a few unexpected twists.
Defining things is a good way to understand them. This post looks at the differences between carer / support worker / babysitter / friend.
2018 has had a bit of a rough start. Some things where muddled, this post is all about how we went about un-muddling them.
I’ve had an incredible end too 2017. I started making a BBC podcast, i’ve traveled to Sweden and around the UK for my work and i even managed to start learning too fly a plane.
With 2018 already underway i wanted to do a quick post to explore what’s important to me in 2018.
The last few months have been really great. My support setup is working well and i took some time of work to recharge a little after a few busy months.
I also had my 28th birthday. Here is some of the things i have been up to in roughly chronological order.
What I can do when I am staying with friends is a good way of seeing into the future.
A topic which comes up from time to time is around the difference between “Aspergers” or “ASD”. Diagnostically the difference is very small (age of speech development), however in other ways the difference is much more pronounced.
Many people might find it difficult to know if a room is the correct temperature. For example, parents of young children, or autistic people who have low sensitivity to heat.
I am autistic and i struggle to know if i am “too hot” or “too cold”, so i have built myself a mini tempreture gauge which shows me if the room is hot or cold in a visual icon based way.
It’s been a while since i updated, here is some of what i have been up too!
This post looks at how i manage the transition between the various places i sleep and how we have made the days less stressful and more productive.
The last month has been really positive. We’re really starting to see the positive outcomes which come from getting the right support in place.
Over the weekend i had the pleasure of contributing to the Autism Festival a Swansea. I had a really enjoyable time so i wanted to write a little about why i had fun and leave some thoughts about the content and wider angle the conference sent.
A few weeks ago we made some changes to my daily routine and they have been really positive. We sort of knew these changes where needed, but getting ill was a good catalyst to get the changes made. This post explores what changes we made and why.
The last few weeks have been very intense. This post tells the story of my recent trip to A&E.
I burnt myself, and this post explains how applying the social model helped me find an effective strategy to keep myself safer in the future.
Often its the little things which make the biggest difference to day to day life. In the last few weeks i have had a series of small achievements, so i wanted to share them here and give some context on why they are more meaningful than they appear.
This is a post about how i made it into town on the bus.
A short post about how i am using my iPad Pro for reading / working and communicating.
In the last two years i have had to develop a true "autistic" identity. This post looks at the main lessons i have learnt along the way.
This is my 6th week with the LD team looking after me and overall it is working well. I am just about stable and starting to get a good idea of what a sustainable output is. In some areas (like doing a weekly shop and my speech) the progress is really encoraging.
I’m writing this at 6pm on Friday, i wanted to get my thoughts written down before i headed to my freinds. I am suppose to be at my flat this weekend, but we cancelled those nights. I will stay with my friends so i can sleep better.
This post looks at how the last few weeks have gone. Some of the achievements, along with some of the remaining challenges.
I am happy my freinds are less stressed now the LD team is looking after me. I am also happy i can go shopping once a week and pick whatever food i want. I feel calmer and more stable and my speech is improving.
However, i really don’t like being trapped in my bedroom so much and i don’t really know what to do about it.
A short exploration of what elephants are and how i use them to shape my environment to meet my needs.
For the last 17 days we have been following a new support structure. The local learning disability and autism team have taken over my day to day support and taken the pressure off of my freinds.
Over the last week i have been amazed at how accepting and supportive the learning disability team are in how they work with me. This post explores why and how.
Today is my third morning since we started the new support plan and so far it’s going pretty well. To make it simple, for the first 5 nights the support person i know best has been looking after me and thats gone well.
My new routine starts tomorrow and it’s a bit scary but also very exciting. We are starting with 5 nights at my flat with the learning disabillity team looking after me.
My approach to the concept of masking and some the the thoughts behind it.
I was recently asked over Twitter to share my experiences with AAC, here is a summery of my thoughts.
This week has been a huge adventure. I have been staying with friends because the babysitter was unwell and the LD team are not ready to take over yet.
Tomorrow i am going to Germany with my freinds. We are visiting the [largest indoor waterpark in the world](german water park indoor largest) for a few days. This is my first trip to mainland europe and my first time in a country with a different language.
With that in mind, i thought it would be useful to share some of the tools i am taking with me and some of the techniques we will use
This post details the conflict I get into when I need to weigh a principle I hold against the pragmatic effect on others.
As we get towards the end of 2016 i wanted to document my support network now and also write a bit about the changes which are coming in 2017.