I managed 11 nights in a row based at my flat supported by the Learning Disability team. I’m pretty happy with that! In many ways its remarkable! For the first time in over 4 years i am starting to get towards a stable and sustainable home life.
Last week we have a few really awesome achievements too. For example, we went shopping twice and i managed to make it too my PIP assessment.
The PIP Assessment was a really big achievement. I ended up quite shut down in the end (i spent most of the assessment curled up in the corner!) however i had managed to go somewhere new, in the car with a paid career. That’s a HUGE achievement in such a short space of time.
There are still three key challenges which we are slowly working through but are proving difficult.
The first challenge is that i find it extremely difficult to interact with all but one of the carers. I get very anxious when they visit and mostly hide in my bedroom.
The second challenge is that because i am not entirely relaxed when they visit I don’t sleep so well. The sleep issues then mean i have even less energy for the future interactions and work.
Finally, the anxiety and the sleep issues mean that i am getting trapped in the flat. To tired to go to the cafe during the day, and too anxious to leave my room in the evening. This is very challenging. I like spending time alone, but spending 23.5 hours a day alone for almost 2 weeks at a time is very difficult.
That’s about it really. I have just got back to my flat from a weekend staying with friends and wanted to update my journal before my evening routine started.