Blog Archive

All of the blog posts, neatly arrange by year and category… neat

Archive

RIP Apple Watch. Long live Apple Watch.

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I broke my Apple Watch in Vienna on Thursday and replaced it the next day. This is quick post about why I replaced it, and what features drove the decision to replace it rather than going back to my old first gen watch.

All About 1800 Seconds on Autism.

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I’ve been making a podcast. Here’s a post all about what we made and why we made it.,

Developing a Den.

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Since moving to my new flat about 3 month ago i have been experimenting with how i use my living space.

Most days i spend 20-22 hours in my flat. It’s where i do most of my work and day to day living. This places huge demands on the space to be comfortable, safe and sustainabe

NAS Autism Professionals Conference

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My take on the NAS event I’ll be speaking at in a few months time.

When I charge & what I charge

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A little exploring of when I charge for presentations and what I charge.

Settling in to my new home.

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It feels kind of amazing, but its already been about 6 weeks since i moved into my new home. It’s been a pretty long, but positive transition. In this post i’m going to reflect on what is working well and what will need some future tweaking.

New long term home.

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I’ve not written much in 2018. I have been super busy with other autism projects… but more on that in the near future.

Today, i’d like to share some wonderful new. This afternoon i exchanged contracts on a new flat. I should get the keys sometime tomorrow.

I have a new home!

Greenside Adventure.

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An amazing day with a few unexpected twists.

Defining support types.

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Defining things is a good way to understand them. This post looks at the differences between carer / support worker / babysitter / friend.

Defining concepts for 2018

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2018 has had a bit of a rough start. Some things where muddled, this post is all about how we went about un-muddling them.

What's important to me in 2018

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I’ve had an incredible end too 2017. I started making a BBC podcast, i’ve traveled to Sweden and around the UK for my work and i even managed to start learning too fly a plane.

With 2018 already underway i wanted to do a quick post to explore what’s important to me in 2018.

Karting, Cycling and Flying.

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The last few months have been really great. My support setup is working well and i took some time of work to recharge a little after a few busy months.

I also had my 28th birthday. Here is some of the things i have been up to in roughly chronological order.

Previews of my future.

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What I can do when I am staying with friends is a good way of seeing into the future.

Aspie versus Autie can go very wrong indeed.

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A topic which comes up from time to time is around the difference between “Aspergers” or “ASD”. Diagnostically the difference is very small (age of speech development), however in other ways the difference is much more pronounced.

Building a visual temperature guage with a BBC Micro:bit.

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Many people might find it difficult to know if a room is the correct temperature. For example, parents of young children, or autistic people who have low sensitivity to heat.

I am autistic and i struggle to know if i am “too hot” or “too cold”, so i have built myself a mini tempreture gauge which shows me if the room is hot or cold in a visual icon based way.

Holiday Time.

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It’s been a while since i updated, here is some of what i have been up too!

How we approach reducing meltdowns with a variation budget.

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Thoughts on Managing Transition Days

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This post looks at how i manage the transition between the various places i sleep and how we have made the days less stressful and more productive.

Better speach and upcoming adventures.

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The last month has been really positive. We’re really starting to see the positive outcomes which come from getting the right support in place.

My thoughts on Room Scale VR from the autistic perspective.

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Autism festival of Swansea.

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Over the weekend i had the pleasure of contributing to the Autism Festival a Swansea. I had a really enjoyable time so i wanted to write a little about why i had fun and leave some thoughts about the content and wider angle the conference sent.

A Better Daily Routine.

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A few weeks ago we made some changes to my daily routine and they have been really positive. We sort of knew these changes where needed, but getting ill was a good catalyst to get the changes made. This post explores what changes we made and why.

"Your Bleeding From your Head..."

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The last few weeks have been very intense. This post tells the story of my recent trip to A&E.

Applying the social model well. (Example!).

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I burnt myself, and this post explains how applying the social model helped me find an effective strategy to keep myself safer in the future.

Little achievements

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Often its the little things which make the biggest difference to day to day life. In the last few weeks i have had a series of small achievements, so i wanted to share them here and give some context on why they are more meaningful than they appear.

Bus Adventures.

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This is a post about how i made it into town on the bus.

How i use my iPad Pro.

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A short post about how i am using my iPad Pro for reading / working and communicating.

Developing an autistic Identity.

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In the last two years i have had to develop a true "autistic" identity. This post looks at the main lessons i have learnt along the way.

Hiding away today.

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This is my 6th week with the LD team looking after me and overall it is working well. I am just about stable and starting to get a good idea of what a sustainable output is. In some areas (like doing a weekly shop and my speech) the progress is really encoraging.

A weekend to recharge.

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I’m writing this at 6pm on Friday, i wanted to get my thoughts written down before i headed to my freinds. I am suppose to be at my flat this weekend, but we cancelled those nights. I will stay with my friends so i can sleep better.

It's going pretty well, but its not easy.

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This post looks at how the last few weeks have gone. Some of the achievements, along with some of the remaining challenges.

PIP assessment

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Stuck in my room.

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I am happy my freinds are less stressed now the LD team is looking after me. I am also happy i can go shopping once a week and pick whatever food i want. I feel calmer and more stable and my speech is improving.

However, i really don’t like being trapped in my bedroom so much and i don’t really know what to do about it.

Elephants explained.

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A short exploration of what elephants are and how i use them to shape my environment to meet my needs.

New routine is going well.

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For the last 17 days we have been following a new support structure. The local learning disability and autism team have taken over my day to day support and taken the pressure off of my freinds.

Accept & Support.

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Over the last week i have been amazed at how accepting and supportive the learning disability team are in how they work with me. This post explores why and how.

So far so good.

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Today is my third morning since we started the new support plan and so far it’s going pretty well. To make it simple, for the first 5 nights the support person i know best has been looking after me and thats gone well.

Independence starts tomorrow.

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My new routine starts tomorrow and it’s a bit scary but also very exciting. We are starting with 5 nights at my flat with the learning disabillity team looking after me.

No masking.

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My approach to the concept of masking and some the the thoughts behind it.

AAC for verbal autistic people.

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I was recently asked over Twitter to share my experiences with AAC, here is a summery of my thoughts.

A taste of independence & autonomy.

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This week has been a huge adventure. I have been staying with friends because the babysitter was unwell and the LD team are not ready to take over yet.

Travelling Tools & Tips.

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Tomorrow i am going to Germany with my freinds. We are visiting the [largest indoor waterpark in the world](german water park indoor largest) for a few days. This is my first trip to mainland europe and my first time in a country with a different language.

With that in mind, i thought it would be useful to share some of the tools i am taking with me and some of the techniques we will use

Language matters: why I can't recommend some autism trainers / authors.

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This post details the conflict I get into when I need to weigh a principle I hold against the pragmatic effect on others.

My Support Network.

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As we get towards the end of 2016 i wanted to document my support network now and also write a bit about the changes which are coming in 2017.

Identity is hard - why I use identity first language

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Some thought on what identity means to me and then how that influences the language I use.

Making my bets: new support plans.

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When i worked in the BBC Radio and Music team one of the senior managers used to use the phrase "making bets" when it came to strategy decisions. I always liked the tone, it was a clear intention, but also an acceptance that it was a guess.

With that in mind, i’m starting to make a few bets of my own with my care.

Where to develop next?

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The last few months have been really positive for me. We have mostly resolved the housing issues which where causing so much of the anxiety. Everyday still feels a bit like an exam, but it’s an exam i am well prepared for and can leave at anytime.

The reduced anxiety gives me a chance to look at how i am approaching my life and to re-evaluate my goals and ambitions.

Abandon Office, Abandon Office...

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Its surprisingly difficult to fit an extra bed into my flat alongside a sensible and safe working environment.

 Pacing & Fear of Missing Out.

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Documenting my experiences with pacing my energy use and managing FOMO. Also included examples of how to make communication more inclusive and the amazingly positive effect that can have on day to day life.

Getting Settled

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I’ve not been able to write as much since i moved into my new home for a few reasons. First, i’ve been really busy helping out a friend on a side project, and secondly because there’s not a whole lot to write about

About

Spaced Out & Smiling is about exploring the fun side of Autism, and trying to understand what it means to be Autistically Happy.

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Jamie: @JamieKnight
Lion: @Lickr